10 things I wish I had been told at diagnosis
1.    Your child is a person with gifts and skills and equal to all others. We are programmed as a society to feel sorry for people with...
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traceycampbell77
Dec 1, 202315 min
Supporting communication
If someone you know struggles to use spoken words to meet their communication needs, it can be difficult to know what you can do to...
5660
traceycampbell77
Mar 27, 20237 min
Understanding Behaviour
People with Angelman syndrome are known for their wide smiles, laughter, and fun personality. This was evident early with Leia as she...
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traceycampbell77
Jan 31, 20233 min
A year post NHS – What have I learned?
A year ago as I gave up my 23 year career in the NHS I wrote this blog post reflecting on what had led me to those decisions. I felt it...
520
traceycampbell77
Jan 17, 20232 min
Collective Consciousness and Belief in AAC Users
Humans are a successful species because they are connected to one another through collective beliefs and thoughts. These beliefs help...
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traceycampbell77
Jan 9, 20236 min
Essential Info for Parents/Carers of Disabled Children & Adults – Part 1 Finance
When you first receive a diagnosis or begin to suspect that something is different about your child it can be a lonely, daunting, and...
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traceycampbell77
Nov 24, 20223 min
To all the adults who make decisions for me
To all the adults who make decisions for me, I would like to take this opportunity to ask for a really small thing. Well let me clarify...
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traceycampbell77
Aug 23, 20225 min
Why I cannot get onboard with the new college for school leavers with complex needs.
Firstly, I should say that this is just my opinion. I really hope the students and families who choose to go will have a great...
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traceycampbell77
Apr 22, 20223 min
Voting in Local Elections 2022
Voting in the local elections 2022 We are all excited about this election, it falls on Leia’s 16th birthday and that means she can vote!!...
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traceycampbell77
Mar 24, 20227 min
Fight Club. The Rules of Literacy and Angelman Syndrome.
When I was asked if I could present at the AAC SIG (Click here for link) day on Literacy, of course I said yes. If you would rather skip...
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traceycampbell77
Feb 2, 20228 min
My Journey with Angelman Syndrome. Why end a 23-year NHS career?
A reflection on how parenting someone with disabilities can change life in many unexpected ways! Even changing careers.
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Tracey Campbell ACT
Jun 23, 20213 min
A plea for a voice
I wrote this several years ago in response to the continued struggle for people to get access to appropriate communication. I wish things...
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traceycampbell77
Jun 23, 20212 min
I am by Leia Campbell
A poem written by a 15-year-old with Angelman syndrome using AAC, alternative pencils and a writing frame.
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